Although your situation looks dark and it’s easy to believe that life will always be this way – dare to be the person who refuses to believe that.
It has been a few weeks since I posted the last Pain Warrior Pep Talk – but you guys know it’s a struggle to blog as a person with a chronic illness!
The last few weeks have been more difficult than usual. Morale was low and my canister of ‘patience for chronic pain’ was running on empty. There were loads of tears and prayer. But God always renews my strength when I feel like I can’t cope anymore.
So warriors I want to encourage you to hang on in there, don’t you throw in the towel on life. Although your situation looks dark and it’s easy to believe that life will always be this way – dare to be the person who refuses to believe that. Now I’m not talking about being a person in denial, I’m talking about choosing to believe that life will get better for you. Tear yourself away from this concept that says ‘things will only get better if your ilness is cured’. Instead, your mind should be set on the concept that says ‘things will only get better if you choose to live life beyond your illness’. What if I told you that your life can be better right now, DESPITE your sickness? It can be, but it all STARTS with your attitude and your perspective on life. It comes down to you choosing to look at life differently. This isn’t an easy transition, but it can be done. So let’s explore it…
How is it that there are people out there who have experienced terrorising and heartbreaking situations – yet they still manage to have genuine smiles on their faces? How do they manage to have true contentment? How do they get there? This is something I have been exploring and learning myself. I will continue to share more with you as we go along. The first thing I’ve come to recognise is the best way to start changing your perspective on life is by recognising what good things you have going for you.
Keeping that in mind, I have a task for you this week warriors; I want you to focus on one value this week – gratitude. what are you grateful for? Write those things down and pin it up in the place that you spend most of your time. This will serve as a great, visual reminder that you’re blessed.
Although it can seem impossible to love life when you are battling with chronic illness, I don’t believe it is. However, the first step to learning how to do this starts with not giving up on life. You can’t continue to love life if you have given up on it. So keep your head up, keep walking THROUGH this dark tunnel (like I mentioned in the last Pain Warrior Pep Talk) and hang on in there.
Feel free to share your thoughts and comments on anything that has helped you to change your perspective on life warriors!
I am pleased to write that the Pain Warrior Code blog has been nominated for the Liebster Award! I would love to start off by thanking the lovely Alyssa – the lovely lady who is being the ‘Fight MS Daily’ blog. She is very inspirational and posts fantastic articles that really reach out to people – hence why she has such a large following! I encourage you all to check out her blog and give it a read. My favourite article of hers is…
This version of the Liebster Award comes with 6 rules, they are:
- Thank the blogger who nominated you
- Share 11 facts about yourself
- Answer the 11 questions the blogger gave you
- Nominate 11 bloggers who deserve the award
- Create 11 original questions for the nominees to answer
- Let them know they’ve been nominated
11 FACTS ABOUT ME!
- I’m a devout christian, I believe in having a personal relationship with God and following his will for my life. I’m a not a religious person. Neither was Jesus.
- I can play 3 instruments WELL: guitar, piano and ukulele. I play more but…I’m not so great at them!
- I can speak Turkish, I grew up with a lot of Turkish friends and took interest in the language.
- I LOOVEEE cultures; which is why I have a degree in anthropology.
- I like K-pop music, and Korean dramas. I got into them last year and have been addicted since.
- I have three cats but I’m a dog person. Thats a long story…
- I’m British, my heritage is Jamaican. Both sides of my family are from there.
- I enjoy reading chick lit, but I hate chick flicks! lol
- It’s on my bucket list to travel to each continent across the world. I have intense wanderlust that is waiting to be fulfilled.
Answers to Alyssa’s Questions
- Do you prefer cats or dogs? I grew up with dogs first. So I would say I’m a dog person. I love that they rely heavily on their relationships with humans, compared to cats. They’re too independent!
- What is your favorite color? Blue!
- What is the most amazing place you have been able to visit? So far, it was the ruins in Side, Turkey. Particularly the Antique Theatre. I was in awe of the place!
- If you could go anywhere in the entire world, where would you go? It would either have to be Miami in Florida or Brazil.
- What has been the best day of your life? It would have to be the day I got baptised. It is the best decision I have ever made.
- Even though I already think you are amazing, if you could change one thing about yourself, what would that be? Probably my stubbornness. I know being stubborn can be a blessing sometimes. But other times, it’s not.
- Who is your biggest inspiration in life? It would have to be my mum, she made so many sacrifices for me and my family. She is a hard worker and determined. She has a hustler’s spirit (a law abiding one of course). She is solid. But she still has a big heart for people and is always fair.
- We all have bad days in life, how do you make it through those days? Sometimes it takes me a while to gather my thoughts. I ALWAYS take it to God. Sometimes I cry, lament or pray for strength. Other times I just listen to what God has to say to me. He always renews my strength and my mindset that I can get up and fight another day.
- What is your biggest pet peeve? People who chow down on food loudly. I shouldn’t be able to hear your mouth clapping. I shouldn’t hear sucking noises. Cut that nonsense out!
- What type of book do you prefer to read and who is your favorite author, if you have one? I LOVEEE music literature/fiction. I don’t know if that’s the right terminology but thats what I call it. Fictional stories that are based around characters who are musicians. I really enjoy them.
- What was your absolute favorite movie that you can never get enough of? It would have to be Bad Boys and Beverly Hills Cop 2…notice the pattern here? lol
My 11 Nominees:
Inside the Rainbow – https://insidetherainbow.blog/about/
Pain Pals Blog – https://painpalsblog.com
Romans 535 blog – https://romans535blog.wordpress.com
A Chronic Voice – https://www.achronicvoice.com
The Frozen Mind – https://thefrozenmind.com
Highway To Healing – https://highwaytohealingblog.wordpress.com
Gail Loves God – https://gaillovesgod.blog
Musings Of A Wounded Healer – https://thewoundedhealer.blog
Chronic Pain With A Higher Perspective – https://validatingchronicpain.com
Brainless Blogger – https://brainlessblogger.net
Life With An Illness – http://lifewithanillness.com
Undeniably Sara – https://undeniablysara.com
My questions for my nominees:
- Where are you from? (heritage/where you grew up)
- What does your name mean?
- What inspires you?
- What is your funniest memory/experience that you can recall of?
- What is your favourite quote from a film?
- What gift or talent do you wish you had?
- Which countries have you travelled to?
- Would you ever consider living abroad?
- Do you have a particular food that you can’t stand?
- What is the most valuable lesson you have learned recently?
- What made you want to start blogging?
I would like to thank everybody who has read and supported the Pain Warrior Code! I really appreciate all that you have done to help fulfil the purpose of this blog – which is ultimately to empower, educate and elevate people who suffer with chronic pain and illnesses. Please go ahead and check out the other blogs that I have nominated and tagged into this award post. Don’t forget to check out the lovely Alyssa’s blog as well!
Have a great weekend warriors!
So tomorrow is the day I finally have another MRI…will be posting about this. Pray for me warriors!
I experienced a hemiplegic migraine attack for the first time. I wanted to share my experience with you and hopefully encourage you in the process.
Good Afternoon Warriors, I hope you are all having a decent weekend so far.
I wanted to share my experience with you and encourage you in the process.
Some of you may have seen that I posted a message on twitter, facebook and instagram, highlighting that I experienced a hemiplegic migraine attack for the first time on Friday.
SO what happened?
Well I had been fighting off a migraine that had been lurking since the beginning of the week. I was quite successful in praying it away until Wednesday evening. It felt like an annoying – but normal headache. I figured it would have softened to a manageable level by the time I woke up on Thursday. However, that wasn’t the case…
I first woke up about 2 hours before my usual time. I felt EXTREMELY hot! I assumed it was because of the weather and attributed it to that. Thus, I spritzed myself with water and went back to sleep. When it was time to get up, I had woken up in a nightmare; the whole left side of my body was dead. My face, arm and torso couldn’t move. I felt an excruciating pain in my arm, as well as an intense throbbing in the left side of my head. This was extremely out of the ordinary for me because most of my migraine attacks usually take place on the RIGHT side of my head, or across the whole of my frontal lobe.Â My breath was also short and I was struggling to breathe.
Was I having a stroke? No I couldn’t be…I remember reading something about migraines being closely linked to strokes. About people having migraines that felt like a stroke…or people having a stroke that felt like a migraine…or was it about people having what they THOUGHT was a migraine, when really they were having a stroke? GOSH I COULDN’T REMEMBER!
So I panicked.
All rational thought had dispersed and I knew I wasn’t thinking clearly, so I dragged myself to my sister’s room next door. God is good because he used my sister. She helped me to calm down. She praised God and prayed to him for me when I couldn’t catch enough breath to do it myself. Once I calmed down, I was able to focus on putting my trust in God to sort the situation out.
By the end of the day, the feeling in my hand returned. But that was about it. In my head I wondered if I should go to the hospital, but I decided there was no point – I was already in enough pain and struggling to do anything. How on earth was I going to get dressed, go to the hospital and sit underneath blinding lights and crazy noise (remember I’m hypersensitive to BOTH) for countless hours, only to be given paracetamol? PARACETAMOL DOESN’T EVEN WORK FOR ME ANYWAY!!
The following day I was still in a lot of pain, and my arm/torso still felt like it was being tormented with pins and needles. The only description I could give at the time was “my arm felt like it wasn’t a part of my body anymore, like it was a separate body of it’s own”. It has been three days since it started and my arm still feels a bit disconnected sometimes, like it’s an add on.
After doing loads of research, I came to find out what I had experienced was a hemiplegic migraine: which are more rare than other types of migraines (according to the medical sites I’ve read). They differ greatly from the migraines I usually experience. The articles I read highlighted that they usually happen as a result of a mutated gene. They also pointed out that it sometimes takes people days for their body to fully recover and feel normal again after such attacks. So I’m keeping my head up and trusting God that it will pass. That I won’t have to experience this again. But I am reminded that if I was to experience such an attack again, God will be with me just the same. After all, he promised in the bible that he would never leave me nor forsake me. He also promised that he will be with me during the difficult times;
“…listen to the Lord who created you…I have called you by name; you are mine. When you go through deep waters, I will be with you. When you go through rivers of difficulty, you will not drown. When you walk through the fire of oppression, you will not be burned up; the flames will not consume you.”
Warriors, what I experienced was frightening and made it very easy for me to panic. However after some time of reflection, I realised something; it’s important to have an anchor. That anchor is what pulls you down. It helps you to regain your senses and to think clearly when you are panicking. That anchor is the person you can trust to be 100% honest with you because they only ever have your best interest at heart. Now God essentially is the one who keeps you sane, upright and enables you to bounce back during situations that wreak havoc on your life. That being said, he will also place people around you to anchor you down and talk sense into you. Those people for me are essentially my sister and my mum.
Pain warriors, I encourage you to figure out who your anchors are – the people who you run to in times of need when you aren’t thinking clearly. They don’t always have to be people who are around you physically. For some of you, they might be people who you contact straight away online or via the phone. They might be friends or even colleagues who you work with. Once you have that individual in mind, take a moment to give thanks for those people. They have your back. If you feel like you don’t have one, trust that you will get one eventually, even if its through the spoonie communities online – that’s absolutely okay. Because that anchor will understand your struggle better than anybody else!
We all need someone to anchor us down when we are losing grip of everything. I urge you to hold on to your anchors, because they hold on to you.
Have a great weekend warriors. I’ll be sharing my update about my chronic life journey in the next few days!
Most of us pain warriors can’t control how our illness affects our bodies, but ALL of us can control how it affects our minds.
I originally intended to write this as a short pain warrior pep talk, but I found the message kept developing further as I was typing it up. I believe there are many people whose spirit has been deflated by the constant internal battle they’ve had to face. I hope this helps…
This is a reminder to hold on to who you are. I have often written to you guys that you are more than your pain. There is more to you than your illness. Your illness is a part of who you are, of course. However don’t be deceived into believing that is ALL you are.
Amongst other factors, your personality, character and experiences all play a part in shaping your identity. Your pain has also played a part without a doubt. However we must take the time to be reflective of ourselves & our illness. If not, our pain can dominate everything and cause us to be shaped into a person that is no longer even close to who we truly are. Pain IS hard. Pain DOES change you. But the one thing you must not allow your illness to do is diminish your spirit. Being ill will inevitably pull you down for a while, but choose to rise up again and fight back warriors. You deserve to have a good life. A good life doesn’t exclude hard times, unfortunately those are guaranteed. But you are allowed to have a life that is beautiful despite your struggles. I keep fighting because God has always been faithful and I’m reminded that he came so I could have life abundantly. An abundant life is not one that is solely consumed by my sickness, but one that is focused on having peace, love towards others, contentment and gratitude for the blessings that I have in my life. Now these things don’t come overnight – but through actively seeking God, they come over time.
I’m sharing this because I want you to understand that my identity hardly comes from my sickness, but more from my relationship with God and my faith. That’s what has anchored me & pulled me back when I felt like my sickness was changing me for the worst.
I encourage you all to remember who you are. Who you were before you got sick. That person is still in there, but has been buried under the rubble of your pain. Now I’m not talking about the immature or less aware parts of who you were. I’m focusing on those good parts of you that your illness has suppressed; maybe you used to be outgoing, patient, forgiving or even courageous. Those traits are essentially who you are. Allow them to rise to the surface again. Your illness has attacked your body and your mind, but you have the power to take your mind back again. Most of us pain warriors can’t control how our illness affects our bodies, but ALL of us can control how it affects our minds. Many of us just don’t realise this. I urge you to take some time out to reflect on where you are right now emotionally and mentally, and ask yourself where do you want to be. Everything starts with a choice being made. Then you fight to go and get it. Go and get yourself & your life back warriors. It’s YOURS for the taking! Remember that you are powerful and awesome! You rule!